Day 2 and Settled in……..

The Testing phase is Nearly over. Had an intense day of various testing. I cant believe how thorough this hospital is. Blood test, Ultra sound on abdomen, legs to check veins, gynaecological checks, bloods, MRI, ECG, Saliva swabs, urine test, optical……with final breathing and heart test tomorrow. Wait have I missed anything? And this is just to ensure that my body is healthy enough to endure the stem cell treatment and to make sure that there are no complications.
The hospital grounds have about 4 different buildings specialising in different areas and they are all connected by Underground tunnels. Tunnels that go on forever and that branch off onto other tunnels. I’ve never seen anything like it.

Dr Fedorenko will go through my results on Friday and will discuss the process moving forward. Stimulation shots will most likely start on Saturday. This is to encourage the stem cells to come out of the bone marrow and into the blood stream, ready for stem cell collection. Will tell you more about that when it happens.

Half way through the day I got a break in between tests and was absolutely famished. Yes, Lunch should be waiting for me, and I wasn’t wrong. The Ox tongue was waiting for me, along with a lovely Fish soup. I said I would try it and I did. I didn’t squirm, I just enjoyed it and thought it wasn’t really that bad. Each to their own, I guess…….

So later on in the day I got to settle into my room and make it cosy and comfy for me. With some personal touches from my girls with some wall décor.

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I miss my beautiful girls, but I know that this is all worth it.

Thank you for your continued love and support!!!

Poppy xoxo

I’m ready…

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I’m as ready as I’ll ever be for this life changing experience. 1 Year has passed since I was accepted and notified by the hospital in Moscow that I will be undergoing Haematopoietic Stem Cell Treatment.

I seems so surreal that I will be jumping on that plane on Sunday.

Where has this time gone! I often wonder where I would be if I didn’t watch 60 minutes that night. I believe in Fate, in things happening for a reason, being in the right place at the right time. What ever it was, I was meant to see this segment of 60 minutes and this was the journey that lied ahead for me.

Without the Love and support from my friends and family, this wouldn’t be possible. I am so grateful to ALL for the loving thoughts, wishes and  positive vibes you have given me. This past year has given me time to reflect and to also prepare myself mentally for this challenging time ahead.

I’m READY!!! Ready to tackle this thing they call MS head on, Ready to go and kick its Butt, and Ready for a New Life without this burden on my shoulders.

I take a deep breath and get Ready to for the Ride ahead……………..

 

“Oh What a Night”

WOW…….I cant believe it!

We had the much anticipated Gala night, on Saturday the 14th March.

What a success, and Oh What a night!!!!!!

I felt like I was getting married all over again with the Hype of it all!!

I am So thank full to all involved in making the night a success and am so blessed to have such amazing people in my life. I was overwhelmed by it all and tried to get around to everyone to say Hello and Thank you.
Thank you to all the people who came along to support me with my Russian MS Journey!

With special guests from Andrew Desliva, Kosta Kilias from “The Castle”, Collingwood’s Anthony Rocca And Melina from MKR 2014.

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Nicholas Michaels From Harcourts Real Estate Working his Magic

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2012 X Factor Winner, Andrew Desilva
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Auction Items

We raised a Whopping $45,000 bringing the total to $70,000 to help me on my way to Russia.

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Its all Happening…

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So yesterday was a nerve racking day…..Building up the courage to Finally book those tickets in. 
Yep…..this is REAL , Its all happening!!!
I have confirmed with Moscow that my admission will be on the 26th of May and they will pick me up from the airport when I arrive the day before my admission.
For those very close to me  will know that the last 3 weeks have been difficult for me with dizziness. I have been feeling off and have been experiencing  vertigo. Squinting my eyes, holding my head, just to get through this mild relapse I am having.  I Spoke to the Head of neurology who explained this was what was happening. School Pick ups have been a challenge to say the least.
Next MRI on the 6th December will  give me an update on where things are at.

Bring On RUSSIA!!!!

My Silent Battle

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I never thought that at the age of 33 I would be diagnosed with Multiple Sclerosis (MS). I am a Young mother with 2 beautiful girls, Sammi & Rahnia (4 Yrs and 7 Yrs old) and have an amazing husband, Bill who has been so supportive during this challenging time.

I look normal….like nothing is wrong…..This is all a façade. People look at me but don’t see anything wrong. They can’t see that my immune system is attacking my nerves slowly and causing scar tissues on my brain and spine.

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This is called Multiple sclerosis.

It can affect any part of the body and very simply, the brain cannot communicate to the body to do the things it wants to do.  They don’t know what causes MS, so there is no cure. I am often tired, fatigued, my head feels strange all the time like I have goose bumps and often experience unusual burning sensations in my face, arms and head. I have issues with dizziness, balance and my cognitive function is starting to deteriorate. I can’t seem to handle Stressful situations as well as I used to.

In the last 3 months my Big toes have gone numb and have been experiencing pins and needles in my feet.

My body just isn’t the same.

In May 2013, I had dizziness, heart palpitations, sweats and shaking whilst driving on the Freeway. Something just took over my body. I went straight to hospital as I didn’t know what was happening to me and why my body was acting this way. They monitored my heart rate and everything seemed to be fine so they sent me home. The doctors advised me to cut down on coffee and that it was probably just related to stress & anxiety. An hour later I was in an ambulance and back at the hospital.

That day, my life changed and I have not felt the same since.

Two months later, in July, I had a severe vertigo attack. I could not walk straight in front of me and was walking sideways. With every step I took, I was nauseous and would vomit. My husband, who thankfully was home at the time, carried my down the stairs and took me straight to the hospital and wheeled me in to the emergency room.

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After being released I had some more tests to check my ears and balance, which were fine.  The doctors then suggested an MRI. I was diagnosed with Relapsing Remitting MS (RRMS) in October 2013.

My life was turned upside down.

I was an emotional mess just dealing with this horrible realisation. I didn’t even know  exactly what MS was.

What do I do now? What does this mean? How will it affect my life? My children? My husband? – My quality of life?  Will it ever go away?

I didn’t know what this all meant at the time and started researching it and found that there are different levels of MS.  It can attack you at any time and you have no idea what it will do.                                                                                                                                                                        So the doctors gave me tablets for anxiety and the MS. Still confused about all that, but I had to take the tablet which I didn’t really like. Since being on the recommended treatment by my Neurologist, my follow up MRI Scans have shown Progression, with New Legions on my brain & Spine. Things are not getting any better.

In March 2014, my husband asked me if I wouldn’t mind watching a segment on 60 minutes about MS. I watched it and could not believe how this woman, Kristy Cruise, had been to Russia and had a Haematopoietic stem cell transplant (HSCT) that stopped the MS in its tracks.

Nobody mentioned this treatment to me.  There is HOPE.

I immediately started investigating and researching and applied to Russia for this treatment and was lucky that I got accepted.

On May 27th, 2015, I will undergo Haematopoietic Stem Cell Treatment to stop this disease in its tracks. HSCT is the only treatment that has been scientifically shown to stop MS in its tracks, however the key to optimum success comes from intervention at the earliest possible time.

So now my silent battle is no longer silent.

I have realised that this journey will be one that is not something that I want to do, but have to do.

I want my life back……..I want to be able to see my children grow up and do the things that I used to before. Play with them and laugh with them and not be tired, dizzy and unwell all time and explain to them that mummy is always feeling sick.

I now have the journey of my life to get through – and I know I will get support from my family and friends to help me to get to Russia for Stem Cell Treatment.

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